It is the start of a new school year. Second grade. Wow!!! My family and I attended a zoo event this past Sunday hosted by those families who are Cochlear Implanted families such as ours. It was great to look at tables full of families who embrace this technology.

Our representative, "Dr. Don" as Ethan calls him, made his way over to our table to visit. As he was chatting away Ethan says..."Dr. Don, do you hear the bongo's? Do you think those are African bongo's playing?" Don hugged Ethan and said "Ethan I love you!" "You are amazing, and he can hear that from over 100 yards away and identify which kind of drum it is." I can't imagine what it must be like for "Dr. Don" to pour his passions in his medical field to bring hearing to a deaf child, and then to see the technology work.

I watched many families with much younger implanted children. If Ethan would allow I would use him as a human model of successful use of implants. Ethan is naturally shy around those whom he does not know, so right now that is not an option. I just want to hug the mama's and squeeze the little ones knowing the journey of wonder they are on. I use to wonder if Ethan would be able to put two words together. I use to wonder if other would ever understand him? I use to wonder if he would be able to function around his hearing peers or would I always have to help others understand him.

It is now second grade for Ethan. He is still going to the same private school since Kindergarten. He is not using an FM, and never has. He is not receiving any services and some might think me to be a bad mother for not taking advantage of the free services the state offers. Guess what? All those things I use to wonder about are now memories of success after success for Ethan. I have to say that I do have the benefit of having had two other children come before him. So it's pretty easy to discern behaviors or set backs that are just developmental issues that any kid goes through or a true hearing issue. Ethan is amazing. He is a fighter. If you have read my previous posts you will read that in many of my posts. I would not have known these behaviors to be normal had his sister not come before him. She too had a similar temperament.

Our latest new understanding is going to a birthday party this week at a place called LazarPort. I was not sure if he could attend the Lazar part of the party. We were referred to Hear Always ( 1-800-483-3123) and they said Ethan is fine to attend this party. It will always be something new to learn has he gets older. I am just glad that his deafness has not set him back academically. I know he is only in 2ND grade but there is lost of ground work being laid into being a strong reader, writer, and math and this year is starting out the same as his last two years. He has the desires and passion to learn. When we work on his spelling words I get to be his teacher and help with articulation, enunciation, and correct spelling and reading. It is truly a blessing as a mother to watch your children learn. An even greater one when your child is still overcoming the obstacles of a handicap such as being deaf.

Long before Ethan could hear he appreciated music. Long before he heard the sounds of music he learned with his eyes. He has two older siblings who are gifted musically. None of which play the drums, but this has been Ethan's passion since he was two years old. He would watch from the front row every Sunday in church as the drummer played. I always sat in the front so he could watch his sister and brother who were part of the worship team. Ethan picked up on the movements of the drummer and never looked back.

Once implanted there was no turning back. Everything was drum worthy and when his first set of sticks were placed in his hand my house became his drum set. One Sunday between services Ethan made his way up on stage and sat at the drums and started playing. Much to our amazement he knocked our socks off and those around. A man standing at the back said something like "wow, how old is that kid, he's amazing" and I proudly said thathe is my son, he is only six years old and he's only been hearing for about three years as he is deaf. Whoa!!! He then went on to say how he has a friend looking to get rid of a drum set and Ethan would be a perfect recipient. Wow, God is sure good. We were not in a position to be buying a drum set, so Ethan got this set and has not stopped playing.

Speaking of his passion for playing the drums he went hiking with his oldest brother Elliot and notice what he is carrying. Those would be his drum sticks. While Elliot was home from college the boys would be out in the garage jamming. I was not a welcome visitor. I even tried to sneak in with a video camera but you know mothers are not always welcome with these cool dudes playing.

Ethan has always been a remarkable child. I know it's braggy, but a day does not go by that I thank God for Ethan and his passions. Nothing stops him from his passions for planes, his passion for music, his passion to learn to ride a two wheeler, or swim or hike and climb trees. He has this amazing "can do" spirit that has no limits.

I want so much to encourage those who are beginning their journey with Cochlear Implants. Yes we have deaf children, yes those earlier years were hard, hard, hard, but the rewards of seeing your child live out their passions is wonderful to watch. Wonderful I tell you in a way that makes you smile and sing and blessed to have this little deaf boy who truly has taught our family so much about life.

Ethan will start second grade this years. He is grumbling over having to learn piano. I assure him that his older two siblings had to take four years of piano in addition to the instrument of choice, but he grumbles to be learning and having to sit still at a piano. I find that I don't have "deaf" issues with Ethan, just your normal brilliant child issues. Just for the record I believe all five of my children are brilliant. WINK-WINK

Oh Ethan you are just so you.

Today was such a wonderful start to the 4th of July weekend. We decided to take today for our big vacation day of fun. Knowing Saturday would be packed on a beatiful sunny day anywhere in Portland.

We were all sitting on a dock eating at Newport Bay. Boats coming and going, cool breeze, and constand chit around the table. I looked at my husband and smiled. I said, you know I use to dream of days liket this. Wondering if our family could sit, talk, laugh and just have fun without the struggles of trying to comunicate to a deaf child. It was so hard in those earlier years. Today our biggest concern was Ethan leaning over the water and losing a device. So we took it off and he was having a ball feeding the geese. No worries.

If you are in the earlier stages of CI work. The work is worth ever minute, every appointment, and every tear you will shed over progress or lack there of. I am so proud to know that Ethan is just a normal kid having fun with his family on a sunny day.

Last week Ethan had the opportunity to participate in a Bilateral Cochlear Implant study at OHSU. The hope is to develop a deeper understanding of the benefits of being bilateral. Ethan was a champ.

Don Plapinger who is the Director of Clinical Audiology has known Ethan since Ethan was almost three years old. I seriously thought on several occasions he was going to break down and cry over the astounding accomplishments Ethan has made.

I got to sit in on the testing and learned some very important things about Ethan. I was shocked. Basically Ethan was asked to repeat about 20 complete sentences. One series was with one CI on, no back round noise, absolute quiet. Which he successfully did. The next with one CI on and back round noise. He just sat in his chair...waiting...waiting and then he would turn around and tell me he could not hear the man talking. With just on CI and back round noise Ethan could not discern the man's voice. This test was repeated with both sides the same depressing results. I was shocked!!!

Then when both CI's were on, with quiet, no back round noise,again he was able to articulate word perfect, even with the same tones used in the sentence. I was feeling already a little bit depressed over the earlier results of just one CI being worn. However, much to my surprise with back round noise, TWO CI's, Ethan was able to repeat back, word perfect each sentence.

People do you hear what I am saying. This is amazing information to have. Being bilateral makes an absolute difference in Ethan's ability to clearly hear. Don was blown away by how well Ethan does. I was even surprised, even after knowing how well he does in school and at home and around town, to be shown the importance of two CI's.

This study comes on the heals of spending the morning with a friend at a local race. About 20,000 people showed up for this race here in Portland called the Shamrock run. My friend wears a CI and only has one. She could not hear, even her cell phone ringing. When someone called she handed me the phone to relay the message. When others spoke, she did not respond. She has commented many times at how well Ethan does in a very large crowd. I figured it was just that he's a brilliant kid, which he is. But seeing how he does in a crowd amazes me all the time. Now understanding the benefits of two just blows me away.

To see him sitting in the chair during the study, with just one CI on not responding at all to the voice speaking with noise piped in for back round shocked me. I am so pleased that we opted for Ethan, on his behalf to be bilateral.

We were met with some criticism over this decision. You know, he should be able to make his own decision when he is older, new technology may come along that is better, he is having the opportunity of ever being able to hear if you go bilateral...and so on.

By the way, this being the midyear school report Ethan has once again made Honor Roll. He gets his purple award and get to go and buy a Lego set. I love saying...."Ethan is deaf people, not dumb". Thanks for reading.

And his miracle continues...

Ethan is deaf. You can go to this link to read up on his miracle http://elizabethonthego.blogspot.com/2008/03/monday-miracle.html.

This week he had his report card come home. He has the same first grade teacher that Emily had over 14 years ago. It's pretty cool to think that this teacher loves her job so much she would be there even for Ethan. In this picture are two awards. One for Honor Roll and the second for 2ND Highest Achiever. I cried when he brought these home. I realized that all the hard work with this kid just paid off in one moment. I remember feeling this very feeling with Emily. Both of these children are my strong willed children. We have joked for years that we don't know which is more of a challenge. A child who is strong willed that talks, or the one who is deaf. Watching how God is growing up both kids and the delight they are just goes to show that God is working every moment in the lives of these kids.
These are Ethan's special ribbons. He will not let them leave his special shelf in his room. So I quickly had to sneak them out. He is more humble that his mother is at this time.

Thanks Lord Jesus for the will you have put into this child to do his best work always, knowing that You gave him a terrific mind to learn. He may not always be articulate, he may not always like it when he does not get his way, but he loves to learn and I am so blessed to watch him humbly put his ribbons on his shelf for display. I am blessed that he can give thanks to YOU for making him special and he knows that when he sees you face to face his first voice to ever hear without cochlear implants will be your voice. Ethan thinks that is very cool. Thanks for reading.

An A+ day for Ethan....

For many months, even years now I have understood the anger outbursts from Ethan. The outbursts of frustration. Basically during that fragile language developmental time he was deaf and his only form of communication was pitching fits at the top of his lungs. These have became less and and less, but even so, we have been working hard on Ethan truly getting a hold of new ideas on dealing with his emotions and ditching the old.

I have had countless days of not knowing what to do, or how best to help him along. I guess I adopted the passage of scripture in Galatians that speaks about the fruit of the spirits. It goes like this:

Galatians 5:22-23
But the fruit of the spirit is love, joy, peace patience, kindness, goodness, faithfulness, gentleness, self-control.

There is not one disclaimer to this passage. Meaning, okay if you are deaf and have problems just dismiss your behaviors and act however you want. I have never dismissed in my hearing children behaviors due to temperament. We are all called to be nice as stated in Galatians. So with that we have been working with Ethan in his attitudes, and his behaviors. Asking him, when a melt down is coming if he is being patient, kind, gentle...etc. etc.

At least once a day often more times than that we will have some kind of issue. This entire week has been a crossing the bridge point for him. He has caught himself about to blow steam, and changing the outcome on his own in a positive manner. I mean in his first breath, realizing he has options for his little life. Making very good choices with how he behaves. All week I have been praising him, thanking him, and encouraging him. He knows he is happier and feeling more in control of his life. He's only six. Some of us don't get that long into adulthood.

Yesterday when he was getting his jammies on, he said..."mommy I have had a really good day today". So I said.."yes you have lets see what made it so good". So together we took inventory and I said "Ethan you have had more than a good day, you have had an A+ day.

Here is what an A+ day looks like for Ethan.

AM
-getting dressed for school on his own,
-eating breakfast without complaining about food choices
-brushing his teeth without being asked.
-Not whining when I say there are only 15 minutes of play before school, but instead saying "okay mommy" and then without any fuss heading to the car without complaint.
PM
-being happy about decisions for how time will be spent after school.
-reciting scripture to his teacher, a week before he has to, for school (Ephesians 6: 10-17)
-eating all his dinner without complaint or whining.
-helping little brothers with Lego's' playing nice with them, and coming to me when being mistreated, rather than taking matters into his own hands...literally.
-reading the entire Green Egg and Ham book without complaining it's too much
-having a true quiet time before bed

Really, this is an A+ day for most kids, but for Ethan even more. He has crossed a bridge this week and my heart just shines with joy in knowing that he is coming along as a deaf kid with the ability to hear with these amazing cochlear implants.

P.S. He did not throw a fit when I chose not to follow the fire engine in the parking lot of the grocery store. He ever so nicely said "mom that makes me feel a little mad". Then in the grocery store we bumped into three fire fighters who took time to answer the questions of all the boys. Twice Eric said to the fire fighter that his brother is deaf, and Ethan said "yes I am deaf, but these things help me hear just fine". I Love being on the sidelines of these conversations.

True Confessions....

Ethan has had implants now since he was just about three years old. He is now 6 1/2. Yesterday for the first time ever I went through all the stuff you get when your child is implanted. All the gizmo's, gadgets, and well did I get a good lesson. Ethan worked alongside me as we placed all the parts in a clear plastic sorter, so it's easier to find pieces and reorder what we need.

I have never used the headphones and really have not ever had the need. It was pretty cool. Ethan has had some malfunctioning and it was time I learn what to do. I was able to replace just the magnet for the coil, which I was able to take out of a defective coil from months back. We have been very fortunate with our experience with Cochlear. Aside from an internal failure which resulted in an explant and then a new implant, the devices have held up really well. Especially for an active boy.

I have just learned how to lock the system so Ethan can not change any of the programs. Which was also creating some problems for him. It was sure nice to read from cover to cover the imformation books, and well I must say I feel a little silly.

When Ethan was implanted we saw and heard immediate results. I was always going to get around to reading all the information. My husband works at the hospital where Ethan is seen, so if there was a problem, my husband would email the dr. and walk over to his office to get a replacement or a repair. This of course required little knowledge or work on my end, and it's been easy. It still is, but it's nice to know how everything works.